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Topic: OT: Dementia/Alzheimers

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medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #14 on: October 22, 2020, 03:05:33 PM »
Damn, that's rough. I feel for you Medina (and HB).

Honestly, I don't know what is worse. A long, slow death or a massive heart attack (my dad) going fast.

Not having a chance to say goodbye still sits with me, 8 years later. So I don't know.
Others have chimed in and honestly, I don't know.  My dad has had several heart attacks and I'll be forever thankful for the modern medicine that has kept him alive these last 20 years since the first one.  His dad died of a heart attack at age 60 in 1970.  Back then they didn't have stents so the only option was open heart surgery and it was very risky.  My dad has five stents and those surgeries were no big deal.  

My dad always told me about his last conversation with his dad.  My dad had gone to breakfast with his dad that morning and talked with his dad and then that afternoon his dad had a heart attack at work and died in the hospital that evening.  I was thinking about this the other day and I realized that I really have no recollection of the last REAL conversation I had with my dad.  

I saw my dad today.  The Kiwanis Club that he has been a member of for 40 years meets for lunch on Thursdays and I took him to the parking lot as the meeting ended so that he could see people (and they could see him).  On the way there Harry Chapin's "Cats in the Cradle" came on the radio and I just about lost it.  Anyway, I obviously talked with him today, but it wasn't a REAL conversation with my dad.  That is the weirdness of this disease.  He is there.  I saw him today.  I helped him get dressed and in the car and I gave him a hug when I left, but that wasn't my dad.  

In a way I wish I had that last conversation to hold on to but in another way I'm glad I've had this time to say goodbye slowly and come to grips with it.  Bottom line, either way sucks.  

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #15 on: October 22, 2020, 03:08:22 PM »
Well written Medina.  And accurate.

My Dad was my dude. That guy taught me how to fish, play golf, be successful in business, play football, baseball, basketball.  He taught me how to Treat people with generosity and respect and dignity, especially women.  He taught me how to run a business and the guy never took a nap in his life. If there was a crack in the driveway he poured the cement. If mom wanted a new deck built in the backyard he dug the holes, put in the posts and build the deck.  And on and on.

His Parkinson’s, which brought on dementia, slowly took him away and killed him but by the end it was is if only his body was there anyway. It was extremely painful to watch.

I’m thankful every day for what he gave me and the 80 years he graced this place.
Thanks HB.  That sounds a lot like my dad.  He taught me how to build decks, replace water heaters, wire houses, you name it.  And it is extremely painful to watch.  Now the guy who taught me how to balance circuits and wire a house can't operate a switch half the time.  

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #16 on: October 22, 2020, 03:10:52 PM »
My mother unfortunately ended up in it's grips.And she was sharp as a tack,and a kind soul and a I shook my fist at the heavens many times for it.I'd rather exit quickly,good luck MB make sure there are no obstacles he could trip/fall on or from.The condition complicates that problem
Thanks Nubbz and that is good advice.  People who haven't been through it don't realize that it isn't just memory and forgetting names, it impacts hand-eye coordination and motor skills in a MAJOR way as well.  My dad is unsteady on his feet now just like my 19 month old, but my 19 month old obviously has a lot better ability to fall without hurting himself.  

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #17 on: October 22, 2020, 03:12:21 PM »
I had an Uncle that passed away from this about a month ago. His wife was my father's sister, so not a blood uncle but one by marriage.

His was pretty quick. About 5 years ago it was becoming noticeable. He'd ask you what you had to eat about five minutes after you just got done telling him about it. Fast forward a few years, and he doesn't even recognize his own children. My aunt also has an adult daughter that lives with her due to mental incompetency. So they made quite the trio. My 80 year old aunt would have to drive them both around and order their food at a restaurant. She had to do all of the thinking for all three of them.

There was a certain card game that he liked, he remembered how to play it all the way up until the bitter end, and he really had a great time playing it. He would start cracking jokes and interacting on a fairly normal level again. So I recommend trying this. Break out the Uno cards or whatever game they might like, and see if they can still play. If it works, you won't regret it.

My Aunt never put him into a care facility. She wouldn't hear of it. It was admirable, but might have led to an earlier demise as he eventually fell down the stairs a few months back and only lived about six weeks after that. But he got to die at home surrounded by loved ones. We just buried him last week.
Sorry to hear that @Brutus Buckeye .  That is good advice about the card game but my dad never liked cards.  I'll try to think of something similar.  

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #18 on: October 22, 2020, 03:14:16 PM »
Very familiar scenario Medina w my Mom's Dad, especially the driving.  He ended up, legally speaking, at least, stealing a car.  I remember tracking him down, we knew it was him, going over curbs, etc.  He threatened anybody who got in his way by getting in their faces.

My Mom tells us all the time,  don't come see me if/ when she gets like this.  Whats the point.  Don't! 
I get that sentiment.  That is one of the major downsides about seeing someone go like this.  When someone dies suddenly it is easier to remember them in their prime.  Once my dad passes on I'll have to remind myself to remember him as the guy who taught me so many things and did so much not the feeble old invalid who couldn't remember my name or who I was.  

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #19 on: October 22, 2020, 03:15:41 PM »
Medina,

I really appreciate you meeting with me on your trip to Lincoln back then.  Moments and memories like those are what life is all about.

I don't think there's a "better" way to lose someone, quickly or slowly.  Maybe better for some people that deal with loss differently.

Hang in there!
Thanks @FearlessF .  We really enjoyed that trip.  We enjoyed all of trips to B1G stadiums but it was better meeting local fans and hanging out at a local tailgate.  Thanks for being such a great host!  My brother and I will see if dad remembers that during the game on Saturday.  

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #20 on: October 22, 2020, 03:42:59 PM »
I read this, and my heart damn near broke.

Many moons ago, I talked to a college professor about loss (a person I'd been very friendly with a few years earlier died at 22) wondering what a dope like me could write on a card to a family that just lost a kid. Her advice was that it didn't really matter what I wrote, it just mattered that you said something at all.

Saying sorry, offering prayers, all of that is just an imprecise way to emotionally buttress someone. I won't do it here, but just know, and I hope I speak for everyone here, when I say we want to, in whatever small ways we can, buttress you emotionally, spiritually and in other ways.

I watched the kind of thing your describing secondhand through 13-year-old eyes. My grandma had lived alone for probably a decade and a half after my grandfather died. She was fiercely independent and held a job helping out at a library. It had many of the same hallmarks. An intense battle over the car until the DMV revoked a licence because of bad vision (and there was an incident or two before the car was taken). That moment when family realized that behavior we'd written off as quirky personality change was a sign of something else.

She never ended up in a place. She was deteriorating, but change is so gradual than no one really thought it all the way through until right near the end or after. Her two kids burned through vacation days, got grandkids up early so a friend could take them to school, in an effort to be de facto live-in caregivers for the last 4-6 months. They didn't know it was the last six months at the time, but we all just trudged forward doing what needed to happen day by day.

In my limited experience, I've only been close to cases where the person in that spot is alone, which is a whole different dynamic. It seems like not being alone robs the whole situation of a certain clarity, and I can't begin to imagine that. I know this will probably be something I deal with. My parents tell me they've accepted the likelihood of ending up in a home, but I know when the day comes, the reason they have to go will rob them of that perspective. Anyway, may God keep you and yours through this.
Thank you BaB.  

The DMV here in Ohio didn't do us the favor of doing their freaking job and taking his license.  I went with him for his last license renewal.  He failed the vision test badly.  The test administrator has a button they push that flashes a light on either the left or right to test peripheral vision.  My dad had ZERO peripheral vision and didn't see the light so the DMV employee said "Do you see that light?".  Then, when he said "no", they told him which side it was on.  He then pulled his head out of the thing, turned to that side and said "Oh, I see that light." and they passed him!  

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #21 on: October 22, 2020, 03:44:33 PM »
I lost my grandmother to Alzheimer's. The hardest part for me was to see my family fight over how to manage her end of life and her meager possessions.

Condolences Medina.
Yeah, that can be worse than the loss sometimes.  I remember reading some of those cases in lawschool and it was heartbreaking because you just knew that the last thing the deceased would have wanted was for their kids to be at each other's throats in court over their stuff.  

MrNubbz

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Re: OT: Dementia/Alzheimers
« Reply #22 on: October 22, 2020, 03:46:28 PM »
MB perhaps I missed it where is he staying now with Family or Health care
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medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #23 on: October 22, 2020, 03:49:42 PM »
My grandfather (dad's side) had Alzheimers. It had started out as little things, but it started getting worse after about a year or two.  He "retired" from engineering to become a farmer in NC (while I was living in California), but I spent a couple of months out there one summer helping work the farm.  I remember that one day he had to go run an errand and there was a phone call at the house that I answered.  The phone call was from a church member who was double checking as to whether my grandfather was ready to speak at the funeral that day.  When my grandfather returned home, I forgot to tell him about the call for about 20 minutes, and he nearly screamed at me (which he had NEVER done before) for not telling him sooner.  I was probably about 14 at the time, and I didn't realize till years later that he wasn't mad at me, he was mad at himself, because he had forgotten that his best friend of 10 years had died four days before.
This really touched home for me.  My dad did things like that numerous times.  He NEVER had a short temper before this (and believe me, as a kid I tested that) but then all of a sudden with Alzheimer's, he would scream and swear like a sailor. 
The worst were his "good" days.  Some days, he would have enough cognizance to realize where he was, and what he had lost.  Those are the days that he would cry and be nearly inconsolable.  His "bad" days were better because at least he was a little happy.
This is also oh-too-familiar.  In a way it is better now that he is worse because, as you explained, he doesn't realize where he is and what he has lost. 
« Last Edit: October 22, 2020, 03:57:10 PM by medinabuckeye1 »

medinabuckeye1

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Re: OT: Dementia/Alzheimers
« Reply #24 on: October 22, 2020, 03:52:31 PM »
MB perhaps I missed it where is he staying now with Family or Health care
He is still at home with my mom right now but it is beyond her.  We are working on getting him into a facility ASAP.  That is why Saturday's game will likely be the last that my brother and I can watch with him.  Once he is in the home we can't visit that long or check him out for a game due to COVID.  

We might be able to do things with him once COVID passes (hopefully next summer) but we don't know if he'll hang on that long and with the way dementia/alzheimer's progresses even if he does he'll be that much less coherent.  

MrNubbz

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Re: OT: Dementia/Alzheimers
« Reply #25 on: October 22, 2020, 03:57:42 PM »
I lost my grandmother to Alzheimer's. The hardest part for me was to see my family fight over how to manage her end of life and her meager possessions.

Condolences Medina.
Of the 5 siblings my one brother from out of town thought she was just fine and even was in denial when she had a minor fender bender.A blessing in disguise as then we told mom the courts took her License but she had a shuttle where we moved her,so she got out just fine and made friends fast.Unfortunately she fell and broke her hip and that was a game changer then the condition declined by leaps/bounds.Had to prove to the one brother that she hit someone.Came close to dis owning him as he was in denial,fortunately no one argued over the estate much of it absorbed by health care
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OrangeAfroMan

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Re: OT: Dementia/Alzheimers
« Reply #26 on: October 22, 2020, 04:06:37 PM »
My mother unfortunately ended up in it's grips.And she was sharp as a tack,and a kind soul and a I shook my fist at the heavens many times for it.I'd rather exit quickly,good luck MB make sure there are no obstacles he could trip/fall on or from.The condition complicates that problem
Yeah, that's what ended things for my last living grandparent.  She had dementia for a couple of years and one day, getting out of the car, tripped and just bashed her head on the driveway.  She died a few days later.  I arrived a few hours before she passed.  


My aunt had been caring for her in her home with 3 teenage daughters.  She's a saint for doing that, because in a 2-day visit it was hard for me to experience my grandma being totally off like that.  
“The Swamp is where Gators live.  We feel comfortable there, but we hope our opponents feel tentative. A swamp is hot and sticky and can be dangerous." - Steve Spurrier

betarhoalphadelta

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Re: OT: Dementia/Alzheimers
« Reply #27 on: October 22, 2020, 04:29:21 PM »
I consider myself lucky that I haven't been that close to it personally. I had a grandmother losing it at the end, to the point that the last time I saw her (my other grandma's funeral) she repeated the same story to me three times. But she knew who I was, at least. 

My wife's best friend lost her mom to early onset Alzheimer's. That was obviously rough for all involved. My wife has such great stories about her, but by the time I met my wife she was already so far gone that that woman no longer existed. She was the one that taught my wife how to make meatloaf, "how much do I put in? Until it looks right!", and my wife paid it forward teaching my son Rachel's meatloaf "recipe". She eventually I think had a fall and ended up with a brain bleed, and she was just so far gone that surgery [even if it kept her alive] wouldn't really improve her life, so they had to put her on hospice and just let her go. 

I'd say that in most cases it's probably better to have someone pass from a disease where you have some warning than to pass suddenly, but I think Alzheimer's is the exception. Because you can't really effectively say goodbye to someone who no longer inhabits the body that's breathing before you. 

Medina, my thoughts are with you, brother. Good luck, and sorry you [or anyone] ever has to deal with this. 

 

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